An American citizen who suffered from progeria and helped raise awareness about the disease. His parents, pediatricians Leslie Gordon and Scott Berns, were informed of his condition before his second birthday. In an attempt to increase awareness of the disorder and promote...Read more research to identify its underlying causes and cure, they established the Progeria Research Foundation approximately a year later. He was the star of the HBO Films documentary Life According to Sam (2013).
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An American citizen who suffered from progeria and helped raise awareness about the disease. His parents, pediatricians Leslie Gordon and Scott Berns, were informed of his...Read more condition before his second birthday. In an attempt to increase awareness of the disorder and promote research to identify its underlying causes and cure, they established the Progeria Research Foundation approximately a year later. He was the star of the HBO Films documentary Life According to Sam (2013).